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24-Mar-2019 18:47

With only one FDA-approved treatment and no widely available cure, life is extremely challenging for people with SCD.Pain — both chronic and acute — is common and results in tremendous suffering and difficulty continuing daily activities like work or school.An expansion of ASH’s commitment to identify and confront unmet needs in SCD patient care, these guidelines will be created with input from physicians and patients to address the unique needs of this underserved patient population.An inherited, lifelong chronic disorder affecting nearly 100,000 Americans, SCD is characterized by rigid, sickle-shaped red blood cells that stick to blood vessels, blocking blood flow.

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These guidelines are part of a broader ASH commitment to conquer SCD worldwide.

Last fall, ASH launched a call to action on SCD by publishing a report card that identified the areas of care most in need of improvement and announced the formation of a new Sickle Cell Disease Coalition.



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